Just when we thought that our plate was full in life, God dished us up some dessert!


Friday, May 20, 2011

Stas update

I can't thank you all enough for your prayers. I must say, they must be working. Since Stas was out of the ER, I have not noticed ANY pain, he doesn't grab at his face...he doesn't seem at all bothered by it. He is only bothered by me messing with it. I have to keep it all lubed up with Bacitracin and wash it before...ick, I don't like that part.

Every day he is making progress...even from beginning to end of day. If I wasn't so tired I would show you a progression of pictures so you can see the healing. But even these pictures say alot. Two pictures from yesterday, two from today...

Thank YOU!!!!!!!

Tuesday, May 17, 2011

Poor, poor Stas!

This morning
Last night
Poor Stas.....

It has been a crazy couple weeks. We are just trying to finish up with Ricky's tonsil/adenoidectomy recovery when we had another little complication.

Stas' guardian angels have to work tirelessly to keep him safe...no doubt.

Boiling water had just been poured in a cup when Stas decided to open the fridge and freezer...a favorite thing to do. When we went to tie the door closed he zipped over and pulled the mug down on to his face, neck, chest and arm. I wasn't home, got a phone call telling me he was on his way via paramedics to the Burn Center at Regions Hospital. Hysterically I traveled there to find my very sad boy who was needing all four extremities bound to keep him from trying to tear the pain off of his face.

After a while, the Fentanyl, Pat-a-Cake, and Itsy Bitsy Spider kicked in and we were good to go. We spent the night in the hospital, not knowing how he would handle it and because his eyes were swollen and they wanted to keep an eye on them.

He slept through the night. Praise God!

We will be seen in the Burn clinic in a week to change dressings. He has to keep Bacitracin on his face at all times heavily. He has dressings on his arm and chest.

It is amazing how quickly the skin is healing. He looks so much better now then he was 8 hours before now, 8 hours before that, etc....

And one other thing.....the person who was with him when the burn happened is WONDERFUL!!! I'm sure they feel awful and if ", etc.... Stas is always one step away from an accident. It seems like it is a matter of time...always. So, as they said in the burn center, "this is nothing, tell her we see it all the time and this is nothing compared to what we see."  We LOVE YOU!!!

Thank you for your outpouring of prayers. You are all awesome people in our lives, and the life of Stas. I thank God for you. Keep praying.


Friday, May 6, 2011

We made it....so far.

We found the trick to let us get a blood pressure...

Tonsillectomy and adenoidectiomy.....check.

We knew this would have to get done some day....DONE. I can't think of any more procedures we have to do. They told me at the hospital that they are almost, finally, done with the remodeling. I thought to myself, exciting, but I hope I don't have to see it for a very long time :-)
A visit from big sister Lizzy.

Bananas...way to go Ricky.

He bit off more than he could chew....or at least swallow.

Playing with the new iPad2 that we won from Alexander's fundraiser!!!

Happy to be going home...can you tell.

I never saw him like this at the hospital. He was really pretty miserable.  Our worst moment...I worked long and hard to get him to sleep. It was midnight and he finally went limp on my bed. The nurse came in within about 20 minutes and said she had to do vitals, turned the lights on, blood pressure, stethescope, temp......I was furious. He cried for about another 1 1/2 or more hours I think. Then restless all night. His poor brain just couldn't settle down. I gave her a somewhat charitable piece of my mind, really, I tried to be charitable. I'm not so sure I succeeded but I did up front, in the middle of his crying tell her that "IF" I get him to sleep again I refuse her to wake him up again for vitals. AMEN!

And by the way, Jodi, NO I was not driving taking the above video. Dan was.

I'm told the worse is yet to come??? He is napping now and I am happy. That's all I know for now.

Tuesday, May 3, 2011

See this happy boy?

This is Ricky a couple of days ago...headset on...dancing to California Justice (Five for Fighting). At one point he comes close to the camera and you can hear him say "California Justice"....okay, use your imagination.  We are starting to understand more and more of what he is saying. Between sign and better articulation it's been fun. Music is what seems to really be helping.

Well, he is happy here, isn't he? 
I'm afraid in a few short days, he won't be quite so happy :-(

He will be having his tonsils and adenoids removed on Thursday. UGH! 
I hate to think about it. Please pray for him.The one good thing we have going for us/him is that he can be hydrated and medicated through his g-tube. It is great to have that as a back-up. I remember agonizing over whether to get that thing....I love it and don't know how we will ever decide to get rid of it :-)

Ricky had labs done yesterday, one finger poke and THREE blood draws! He is NOT an easy poke. Thankfully the Wiggles resurrected him following each poke. The third poke had just enough blood to do his labs..."not one drop extra."  (thank you JPII) Phew! I don't think I could have let them poke him again.

Here he is at the doctors for his pre-op. Isn't he just cute? He is such a ham. He is well known and loved at his pediatricians office. He usually performs for whoever is waiting.


And we LOVE his productions.

Monday, May 2, 2011


These two children have been waiting...waiting to be loved in the safety of a family.


The Ferrone Family has been waiting....waiting to bring these precious girls home.


Can you help this family get to these girls...so neither one has to wait any longer than neccesary?

The Ferrones leave in 12 days to travel to Eastern Europe for these sweet girls...and they are still short of funds!  Please help out if you can....http://wronginalltherightways-travcat.blogspot.com/
Catherine and Travis have been married for 17 years. They have four children, two by birth and two by adoption. Their oldest son is 16, their oldest daughter was adopted from Haiti at age 7. She is now 10. The second daughter is 7. Their youngest daughter is 3 1/2. She was adopted from the Republic of Georgia at 11 months. She has a very similar condition to little Nastya's Aperts Syndrome. They are so excited that God has led them to bring home two more angels! Please consider donating to Nastya and Moira! EVERY DOLLAR HELPS!!! Thank you!!!

This will take you to their donation page....http://reecesrainbow.org/sponsorferrone

4/12/11—APPT IS MAY 17

Follow the Ferrone family's adoption journey on their blog at http://wronginalltherightways-travcat.blogspot.com/